Created in 2000 at the initiative of 3 families, it now has 400 members and 40 contacts with people with Costello syndrome and CFC syndrome, everywhere in France, Europe and other continents.
It is accompanied by a scientific committee chaired by the Medical Professor Didier Lacombe, pediatrician geneticist at the University Hospital of Bordeaux and involving many doctors and French and European researchers.
It has initiated research programs, and collaborations between French and foreign teams (Europe, USA).
published on April 05 2021
published on April 05 2021 by president
published on April 05 2021
published on April 05 2021 by president
published on March 02 2020
published on March 02 2020 by cid.72
published on February 14 2019
published on February 14 2019 by president
Les objectifs de l’Association
Huit nouvelles familles en 2018
42 familles Costello, 55 familles Cardio-Facio-Cutané
Répartition par département, Répartition en âge
Ses Activités 2018
Son Bureau
Ici pour lire le CR de l’Assemblée Générale 2018
published on February 14 2019
published on February 14 2019 by president
published on January 27 2018
published on January 27 2018 by president