Created in 2000 at the initiative of 3 families, it now has 400 members and 40 contacts with people with Costello syndrome and CFC syndrome, everywhere in France, Europe and other continents.
It is accompanied by a scientific committee chaired by the Medical Professor Didier Lacombe, pediatrician geneticist at the University Hospital of Bordeaux and involving many doctors and French and European researchers.
It has initiated research programs, and collaborations between French and foreign teams (Europe, USA).
published on July 24 2024
published on July 24 2024 by president
Sorry, this entry is only available in Français.
published on July 24 2024
published on July 24 2024 by president
published on December 06 2023
published on December 06 2023 by president
published on December 06 2023
published on December 06 2023 by president
published on April 05 2021
published on April 05 2021 by president
published on April 05 2021
published on April 05 2021 by president
Sorry, this entry is only available in Français.