Home
Who are we?
published on April 17 2010 by admin
-
Creation
Created in 2000 at the initiative of 3 families, it now has 400 members and 40 contacts with people with Costello syndrome and CFC syndrome, everywhere in France, Europe and other continents.
-
Support
It is accompanied by a scientific committee chaired by the Medical Professor Didier Lacombe, pediatrician geneticist at the University Hospital of Bordeaux and involving many doctors and French and European researchers.
-
Initiative
It has initiated research programs, and collaborations between French and foreign teams (Europe, USA).